Note: I skip spell check these days to save on time.
Hello.
Phoenix began experiencing seizure activity again last night. It did not show up in vitals signs much only in her movement and face. This is very scary because it was only caught because we recognised it while we were allowed in the room. The doctor called the neurologist to obtain permission to do a 24 hr EEG.
The neuro declined doing a 24 hours EEG and just advised giving her Adivant.
I thought this was a passive approach and not in our baby's best interest, but I'm not a doctor and all I can do is tell them I want the test done, it is (right now) up to the nuerologist to do it or not.
Please continue praying. Please. It has been overwhelming to know how many people are praying and researching and supporting us. I told my boss yesterday that I honestly never knew so many people really and truly cared about Allen and I - people have come out of the woodworks that I haven't heard from in years to support us. It is one of the most amazing things I have seen in my entire life. I didn't even realize we knew so many people...
Love
Shell Allen and Phoenix
Hi Rachele (and Allen),
ReplyDeleteI'm sorry to say I don't really remember you from MasterWorks, but I consider all MWF alumni to be friends. Rachel Mangold sent me a prayer request on your behalf to send around to the MWF community. I posted a link to this blog from our MWF facebook page today, so you should have even more people joining you guys in prayer. I'm so sorry to hear about the circumstances you find yourself in right now. I can't imagine how hard this must be. Here at the MasterWorks office in Winona Lake, we're praying for you guys and for precious little Phoenix.
Love in Christ,
Joy Freschly
MasterWorks Movement Coordinator
biblestudy@mwfestival.org
Rachele and Allen,
ReplyDeleteI don't know you guys, but my dear frind Amanda Henkel asked me to pray for you. I wanted you to know that I have been praying constantly for you and your little girl. I cannot even begin to imagine what you both are going through. I do know that our God is a powerful God! I pray that God will hold your baby in His mighty hands and heal her from her physical complications. As well, I pray for you both to stay strong and continue to rely on God. I do not know all that is going on, but I can imagine how stressful and exhausting it would be. Know that there are prayers coming from Arkansas for your sweet family!
Forever His,
Briana LaForte