Wednesday

UPDATE

Dear family

We ask for prayer. We come humbly begging you to storm the gates of heaven. The devil is at work and I have never in my life felt so attacked as I have this evening. It is a heaviness that is psychical - neither of us can hardly walk upright, hearts feel heavy in our chest and heads are pounding. So much has been thrown at us these couple of days and this evening was yet another crushing blow but from a direction we would never have in our wildest dreams expected.
(sorry for the abnormal writing, but composition calms my mind)
There was a retinal test done on her eyes and we were present for the testing. The eye doctor left and would not tell us what he found. We waited hours for the ICU doctor on staff to inform us and when he arrived his tone was much different than earlier that day.
There is hemorrhaging behind the eyes which they believe to be caused by an injury. They claim that the only time they ever see that kind of damage is from a car accident, a falling accident from more than 5 feet, or abuse.
They have picked number three.
They claim this brings all the dots together - the bleeding on the brain, the strokes, the seizures, the hemorrhaging.
And the CPS was immediately called.
I know I have not seen some of you in years but, you know my parents. You know how I was raised. My husband was raised in a nearly identical environment (minus a few kids) with the same beliefs, down to homeschooling and church a million times a week.
This is not something that could ever, would ever or will ever happen in our home.

Think of your first child. Think of how you felt watching it sleep in your arms, watching that first smile, when they learned to sit on their own, when you realized they smiled because they saw YOU. We are no different. This child is our life.

To be accused of hurting our child intentionally (and trying to hide it) is the most sickening thing we have ever heard.

They are insistent that this is the cause of everything. Since its the only thing that "connects the dots" (because apparently these different symptoms MUST be related) it is what they have decided. Allen's grandparents attempted to reason with the physician and he was insistent that they must not know their grandchildren like they thought they did.

We called people immediately and friends and family have been hard at work all evening trying to find different reasons for hemorrhaging behind the eyes (which they insist is connected) and they have come up with multiple reasons ranging from simply having an intensive vaginal birth to an allergic reaction to one of the medications they have been giving her. There have been at least 10 different explanations given to us in the past few hours obtained by simple research but they will hear none of it.

I ask for four things;
1. Prayer for the doctors to continue looking as to why her health is so deteriorated and FIX IT.
2. Prayer for Phoenix to heal quickly. Miraculously. In such a manner that has never been seen at Sacred Heart Pensacola before.
3. Prayer for wisdom. We are 21 years old. We have nothing but our God. He is all-powerful but we are not always all-listening.
4. Prayer for peace. The overwhelming wave of accusation has been the most humiliating and offending thing I have ever experienced in my entire life.

Again, I beg you to beseach our father in heaven. Ask everyone you know to call on Gods wisdom, healing and mercy. He controls everything in this world, but the devil fights Him every step of the way.

We love you and we hope to send you good news soon.

-Shell, Allen, & Baby Phoenix

phoenixnicole.blogspot.com

6 comments:

  1. Our entire fanily is praying for God's comfort and mercy for all of you during this horrid trial. May His hand be on your daughter and intervene miraculously in the doctors examinations to find the absolute defining reason for her situation.
    The Melsoni family

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  2. We are all praying and working as hard as we can to help!! When you get to see Phoenix,please tell her that grammie and grampa and all her aunts and uncles love her very much!
    Love you,
    Mom

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  3. Sounds like they need to air lift her to a Children's Hospital. They need a second opinion.

    YOU know it isn't what the doctor is saying so he is way wrong & they are loosing time when they need people who deal with children & infants.

    Doctors don't know it all & they aren't God.

    I googled "closest children's hospital near pensacola, florida". It looks like that is :

    http://www.mch.com/

    Miami Children's Hospital ®
    3100 SW 62nd Avenue
    Miami, Florida 33155

    By phone: 305-666-6511
    Toll-free: 1-800-432-6837
    Physician referral: 1-888-MCH-DOCS

    I would start begging any human to take here there. Start having your parents call those numbers.

    Here is the directory :

    http://www.mch.com/medicalServices/findPhysician/search.aspx

    Here is ophtham.:

    http://www.mch.com/medicalServices/findPhysician/search.aspx

    Here is neurology:

    http://www.mch.com/medicalServices/findPhysician/search.aspx

    Here is the neuro with the most letters after his name :


    Roberto F. Tuchman, MD, FAAN, FAAP
    3200 SW 60 Court #302
    Miami, FL 33155-3009
    Phone: (305)662-8330
    Fax: (305)669-9589

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  4. You are in our prayers, and most importantly you are in His arms! Hang in there, Laurie Turner

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  5. Just talked to Sara L.& learned Phoenix is in a pediatric hospital. I'm partial to Children's Mercy since that is where Marshall's transplant was.

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  6. The patient advocate at Sacred Heart is Ann Erickson ext. 6120.

    I've used the Patient advocate before. It is sad that hospitals need these people.

    I would suggest all the grandparents call her with your concerns.

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