Wednesday

11:00 AM MARCH 2 UPDATE

My mom suggested I update the blog throughout the day to cut down on calls and texts and to help our sanity as far as explaining things over and over.


I will update you with latest first and move backward so you can get the latest first and don't have to skim through if you already know the rest of it.

8:15 AM MARCH 3
She was taken to a STAT CT scan to check if the swelling of the brain had increased. Her movement and response had significantly decreased over the morning.
A central line will be placed in the main blood vessel in her leg and she will possibly need a blood transfusion because her red blood cells are slowing reproduction. This could be from the medications, the multiple blood draws, lack of food until yesterday evening, exhaustion or from a blood disorder which they will begin looking into today.
They will be looking at her heart today and have taken a full body x-ray.
They have run out of normal problems that occur and are beginning to look into rare diseases or disorders.

9:15 PM MARCH 2
A new feeding tube was put in place and they began to give one teaspoon of food per hour. Her system has accepted it so far.
She is begin given Phenobarbital and Cerebyx periodically, and she is on a continuous drip of Versed and Fentanyl. Each medication serves for either seizures, sedation or pain control. She was also given Lasic (sp?) to help with digestion.

7:00 PM March 2
The chief neurosurgeon called us and asked for immediate authorization to go into her brain through the soft spot and try to get some of the blood off the brain to test it for infection. It was tricky and they were not able to obtain much. The neurosurgeon has an extremely impressive resume (thanks Jenny) and even though she was a little quirky (like talking to the elevator...) her track record is excellent.

I do not remember all the times of everything else so here's the story;

March 1st Phoenix had a seizure and was taken to the hospital where we were discharged with no instruction and no test done, just a horrible experience attempting to get an IV and service from a very rude nurse who would not give a new nurse when requested.

A few hours later she had another seizure and stopped breathing so Allen gave her CPR for 15 minutes until the ambulance arrived. We were admitted, they began an EEG and she began to seize uncontrollably while the EGG was going on. She was then heavily sedated and put on a ventilator which she has been on ever since.

They scheduled an MRI for the next morning, which showed them stroke activity and blood on the brain.
I don't really remember what else I'm sure I'll think of some more things but not right now.
Just keep her in prayer. I was just in to see her and she was yawning and opening her eyes a little bit. I was there for the heart ultrasound and she was upset that the gel was cold so it was good to see a response.

Love
Shell

2 comments:

  1. Thanks for working on this, Shell! I'm passing the link along to others. :)
    Much prayers for you, Allen, and Phoenix!
    LOVE YOU!!!
    MOM

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  2. http://www.cincinnatichildrens.org/svc/alpha/c/child-abuse/tools/retinal-hemorrhage.htm

    Retinal hemorrhage can be caused from CPR in some cases...check it out.

    ReplyDelete